Confessions of the Chronically Frustrated

Other than the brief entry I made this past February, I haven't written in over a year... Not one thing. The disease progressed so rapidly and aggressively, I began losing regular cognitive function, thus, making it damn near impossible for me to form a comprehensive thought... However, I'd started a treatment that actually showed promise. My LLMD (Lyme Literate Medical Doctor) decided that I was FINALLY ready to have a PICC line placed and administer IV Rocephin everyday... until recently. <-- (But we'll get to that tid bit later) ... I slowly began to feel different... And eventually: I wasn't in excruciating pain everyday... I mean, still in pain everyday, but not in the fetal position, screaming, in the middle of the floor, pain. Seizure Activity was at an all time minimum My balance and strength was so much better, I didn't have to use my walker anymore My short term memory had improved... ... as well as focus and comprehension... So m

So, the gates of hell have burst WIDE open!!! In a couple of months it will have officially been 9 years of me being ill. I'm tired. Exhausted. I'm over this shit in EVERY WAY!!!! It's become very difficult for me to express myself, especially through writing... one of my LOVES!!! I'm heartbroken at just how advanced this disease has gotten. Lyme has taken over my life... and that's just the very tip of the iceberg! There's so much more to the story of Lyme, and there's an amazing documentary that can better explain just what is happening. It's called, "Under Our Skin" and free to watch online... this will open your eyes to so much...BULLSHIT... surrounding this illness. I mean, even going through this rollercoaster ride, myself, was enlightened by watching it.   http://topdocumentaryfilms.com/under-our-skin/  <--- So, here's that link. PLEASE WATCH!!! This is a disease that does NOT discriminate. Lyme doesn't care what color you